Posted in autism

Autism.

*I started writing this at 4am when Z was up and had been up since 2.45! 

Autism

What does autism mean to me now nearly a year after thinking Z has autism, and six months after diagnoses. 

As I’m listening to him babble away for the last hour, I’ve learnt that a non verbal person with autism isn’t quiet! Before Z was quiet! Before he found that little voice, before he learnt he could do many sounds with that little voice! From shouting to whispering, that’s a new skill thanks to school. 

I’m thinking we’re always going to go through patches of no sleep. Why? Because that’s what Z does! I know he’s not doing it on purpose, tonight I thought he had woken up cold, as he had undressed himself before bed, yup, taken off his all in one and sleeping bag, I found him with the sleeping bag over his head. I put pj bottoms on him and socks, didn’t want to wake him by putting a top on him so left the heating on instead. Other nights when he wakes up I don’t know what wakes him! 

  
I’ve learnt just because he couldn’t do something doesn’t mean he never will. I have a different child to this time last year, one that has made tremendous progress in every area. 

His eye contact has improved loads with familiar people. He knows what he wants now and how to get it. He notices loads more and he will copy when he wants to, something this time last year he didn’t do at all.

Z will take notice of most things, he’s still interested in how things work, and will start to use a car to go down a garage, he will throw a ball and laugh, he knows how to use a scooter, just needs a little bit of practice! 

So when I was told autism I was also told what ever he can’t do add on a yet, that yet may come in the next few weeks months or even years, but it will come. 

This morning Z woke at 8, I’ve done nothing but yawn! Z seems fine, ok he looks a little tired but I’m most probably looking like something from the walking dead!! He’s gone to his drum lesson and will give it ago, he’s learning to copy when he wants to.

By 3.20 when the bus has been going five minutes he’ll be sleeping! That’s going to be a fact! 

I’ve also learnt that yes, I did make the correct choice in where I sent him to school, I’m glad I choose special school as I’ve seen a big change in him, he loves it, he can’t wait to get in and still all smiles coming home that’s gotta be a good sign havnt it! 
Linked up tohttp://sonssandandsauvignon.com/

For #spectrumsunday 

Author:

first time mother, first time blogger

20 thoughts on “Autism.

    1. He will grow out of it, he will, he will!! I have to keep telling myself. I’m looking forward to the teens when he’s bound to want to stay in bed, and at 3am I’m going to just lay in bed shouting bababababa daddaddaddad Hahahahahaha, see already planning it .

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  1. Such a lovely post. I agree with everything having a ‘yet’ to it. They can change so much in such a short space of time. There is hope around every corner 🙂 I found this post on the blogging mums facebook group and hadn’t come across your blog previously, just to let you know (shameless plugging, I’m sorry) I host a weekly linky called #spectrumsunday it would be lovely to have you join in, I will find you on twitter 🙂 xx

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  2. Lovely post. Great to hear how he is coming on. Well done Z! You’re right, never say never. My boy has Aspergers and is a very different child to the 4 year old version of him. Eye contact is far better. Where he used to take things literally, he taught himself the meanings of what people say so he can understand when people say funny sayings to him. Sorry to hear about the sleepless nights, that must be tough. Has the paediatrician ever thought about melatonin? Some of my boy’s friends have been prescribed it. x

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  3. I feel your pain with the sleep issue! Our 2 year old doesn’t really sleep at all, he will go to bed a 7/8pm and go to sleep but will wake up again shortly after. Last night he slept 6-8pm and then was up until 4.30am and up at 9am. I look double my age! xx

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  4. Looking back I think the first year went past so quick. Both boys are now in different schools that suit their needs. They are both making progress and both are happy. One sleeps much better than the other. We recently took the melatonin route out of desperation really. If you are interested: http://rainbowsaretoobeautiful.blogspot.com/2015/12/our-melatonin-mission-autism-and-sleep.html
    And that’s not doing too bad.

    It’s great that you are seeing progress. Z is lucky to have such a great mum.

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    1. It’s harder because the no sleep isn’t every night, he seems to go weeks of sleeping then wake up for around 3 weeks at a time, last night was 12.15 or so until 4.30 Ish. He’s currently still awake at 8.30. I can’t what for him to go to sleep so I can! The years are going very quickly, I’m glad I started my blog to keep all his progress down!

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  5. I have already commented but just wanted to say I’m so glad we managed to work around you linking up! It is lovely to have you on #spectrumsunday I really hope you join again this week! xx

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