Posted in Review

Afternoon tea at the Celtic Manor

Today we were lucky to enough to be invited * to Celtic manor for summer berry afternoon tea.

Was lovely to finally meet Julie from Picking up toys and nice to catch up with Sally from Teddy bears and cardigans .

We arrived a little early and was lovely to sit and chat.

We were shown our seats, staff were friendly and and offered a glass of prosecco and many different teas, I was boring and stuck to coffee.

Sally went with the prosecco!

Coffee and tea arrived and then the first part of our afternoon tea, savoury and sandwiches.

Being gluten free is always much harder but I had the same as the others, and really enjoyed it, of course the base was different.

Savoury selection

Goats cheese and pesto mousse with pickled shallots.

Smoked salmon, cream cheese and caviar blini.

Baked tomato and chilli tart with minted pea salad.

Sandwich selection

Roasted ham and whole grain mustard.

Mini brioche roll with egg.

Chicken tortilla wrap with garlic mayonnaise and baby spinach.

Hafod cheese and spiced carrot relish.

Obviously being gluten free parts have to be substituted, so I didn’t have the wrap or brioche roll. This didn’t bother me, and I loved the hafod cheese and spiced carrot relish that actually tasted like cheese and marmalade! I don’t like garlic mayo but to be honest I couldn’t taste the mayo so it was all good!

Four of us sitting around a table two with dietary needs did mean that we were actually struggling for room on the table but we made it work!

Next up cakes!

My cakes were slightly different to the menu being gluten free. I did have two scones. These I ate first, I’ve missed scones, with jam and cream, so nice! Still warm I really enjoyed them. I brought the rest of the cakes home with me as was actually really full! How lush does that butterfly look in a cream meringue case.

You can book here and proves start from £21.50 pp

I’m looking forward to Z’s bedtime when I’m going to sit in my pjs and eat the rest of my cakes with a coffee.

* we were gifted the afternoon for review, opinions are my own.

Posted in autism

A day in the life.

Again I’m all over the place on the send 30 day challenge. I will get there! Day 18.

A day in our life.

Today we’ve been up since 2am, last night I had mates over we sat and laughed in the last bit of bank holiday sun. Normally I don’t have people over, my house is a constant mess, but I’ve learnt to look away. It’s messy, it’s lived in, I don’t have gone off food everywhere piles of dirty dishes etc, it’s just not a show house. Far from it.

So when my I’ll call them guests left at 10.30 I went to bed. I was fast asleep by 11.15. At 2am Z was up. Ran straight into the spare room with his iPad. We’ve just had work done so all flooring is up upstairs everything is louder. At 2.45 the husband went into the spare bed with Z. By 3 am I’m hungry, thirsty and needing a wee. By the time I get ready to go back to bed, it’s take the iPad back off Z, as he’s got it on loud, far too loud for even the husband to snore through. 5.15 Z is finally snoring, I can now go back to sleep. They both are in the spare room.

6.45 husbands work alarm is going off. An hour an half I’ve been sleeping. I’m sure I dozed back off until 7.30 when Z came bounding in.

I come around, Z’s already tipping stuff out, I can hear daisy, goofy, Micky, that’s the tsum tsums over the landing. Add some pringles to the mix too.

I need coffee.

Ok I need more coffee.

Now I need food.

This could be the amount of vodka I consumed last night but I need more coffee. I’m tired. I start my day tired.

I’ve left the pooch out, Z’s in the garden too.

Tipped out are now the toot toot vehicles and the ducks.

I need food!

Give Z some milk, do him toast and cook myself food.

9am the electrician comes to finish off .

Run upstairs to pick the tsum tsums up, and apologise for the crumbs of Pringles.

Now fight Z to get him dressed. As fast as I put clothes on him he’s stripping back off.

10.15 meet the girls at soft play. It’s easier to get him out. My house stays cleaner. I now need sugar!

Home for 1.30.

Husband has picked up the toot toots and ducks.

I do Z sandwiches for dinner, I cook myself diner. I sit at the stairs, I’m not being attacked today, I’m tired.

Let Z stay out in the garden, whilst I put the cleaner over the Pringle crumbs.

I’m still tired!

Run a bath and cook Z tea, why I bother ‘coz he’s not going to eat it. He’ll scream for crisps and as tired as I am today he’ll eat crisps the sausage rolls will go in the recycling.

Keep Z in the bath long enough for husband to eat his tea without being attacked.

Z refuses to eat his tea!

Fight to get him up to bed.

The box of Tsum tsums have been tipped over again.

Were early today it’s around 8.15 and he’s sleeping. Meaning I’m not seeing 9.

The toys have been picked up from the garden.

I’m in my pjs. I’m ready for bed. I’d say to get a good nights sleep to do it all again tomorrow.

This has been the last 6 weeks, who decided to call it holidays don’t know what a holiday is ! This hasn’t been a holiday this has been a test of strength! Roll on school!


Posted in School holidays

The end is in sight!

10 days left!

That’s when you return to school.

10 days including bank holiday and the weekend.

10 days to have fun.

Most of the school uniform is bought, school bag, pack lunch bag and new shoes, jacket, don’t think there’s any more. Swim suit do we need new for a new school year?!

Am I counting down these 10 days? Yes!

We’ve done 35 days, I’ll not be lying if I said they were all plain sailing, those 35 days some have been had. The weather again has been rubbish, there’s places I’ve not managed to get you too hopefully I’ll get you there in the next 10 days.

I don’t think we’ve done too badly, we’ve been to the hospital ( I’m taking that two nights as hotel break!), the farm, the beach ( a few different ones), cinema, park, Cardiff and ikea! More than other people have been I bet.

In 35 days you’ve grown up.

You will go back to school a different child. One that now has words. One that now can sort of express himself. One that don’t shut up!

I’m excited what that means for school. Obviously the teachers know how to help you use your words and not use just random words. Hopefully help you learn how to use all your new words to communicate and not just sing songs, count and say the alphabet. Of course I’m still gutted we have new teachers but I’ll get over that by next year I’m sure!

I know you’re ready for school now, you’ve had enough. I’m sure you know school is near, only this week I had school off you, the word school. Then off you went and what sounded like ‘love you, insert teachers name! I tried recording it as back up, just incase we need her back! You saw me and stoped, laughed and went into monkeys jumping on bed.

So we have 10 days left, 10 days to go exploring. One extra day with dad.

Then it’s back to school, back to routine, back to normality and I just like you can’t wait!

Cinema today, not sure what’s in store for bank holiday then we’ll get out Friday with dad. Then it’s back to school week, think that’s when we’ll attempt places with our extra few days off as everyone will be back at school before us!

Posted in struggles

We all struggle

You will struggle.

Everyone struggles.

We all struggle at different things.

What you may find hard, emotionally draining, I may fly at, but something I struggle at you may sail right on by.

Remember, you’ve got this. What ever this may be.

You’ll also have someone.

Everyone has someone.

Those someone’s that just randomly turn up when you’re least expecting them.

Those someone’s that make you laugh, take you places, and make you laugh some more.

Those someone’s that has been there for so long, those someone’s who you’ve just found, and those someone’s you may not even suppose to have.

Those someone’s are also struggling at something.

I believe everyone you meet is there for a reason . Why you cross paths only you will know. Maybe it’s because you are struggling, maybe it’s because they are struggling. Maybe it’s because you need that persons help or you will help that person more than you’ll ever know. Maybe just maybe you’ll never know why you met.

Does that someone actually know how much you value them? How much they make you laugh? How much easier they make everything?

No? Well now think that someone could be you. You are someone’s someone they may not know it like you don’t.

Who says it’s just one someone? There could be many someone’s.

How many someone’s can I get into one post?!

Just because your a parent, carer, wife, husband, son, daughter your still a someone.

You are not just a mother, father or carer you are someone! Try not to forget that.


Posted in friends

I’m not being awkward

I’m ok, I’m still me, yet we’ve hit that stage that we are going in different directions.

Most of you guys are all in same school, you all have that one thing in common. Plus you’ve always known one another.

Me, I joined your group, I fitted in when they were all babies even though Z’s the oldest.

We’ve had laughs, and if it wasn’t for you guys we wouldn’t have done half of what we’ve done and accomplished.

I’ll always be thankful for everything we’ve done. For being there for us through everything.

I’m not leaving, just because I can’t do certain places I will always try my best. I know Z struggles in groups, he’s not used to it, even in school it’s small numbers.

Its that little harder for me, remember when they were all around 18 months 2 years of age, and you were constantly following, constantly watching, constantly panicking about what they were going to get up to next, were they going to attack anyone, were they going to run, were they going to be ok in that big wide world if you just sat at the side in soft play trying to enjoy that sneaky coffee?

Remember those feelings? Those thoughts?

That’s me now.

I’m back there. I’ve gone back in time, not because I never went there the first time, but because now we’ve hit it.

But Z is bigger now. He’s not that cute little toddler that people say oh don’t worry when he’s clawing at someone’s face for eating. Now it’s much harder, he’s much bigger than the children he’s attacking.

Bare with us, we’re not leaving you for our new friends.

As much as my new friends are great they’ve not been there from the start. They may get us much easier, may understand us but they are not replacing you.

We need our two groups. Not only I but Z too.

Z knows everyone, and he’s happy in both groups, his school friends get him, accept him, I’m not saying the others don’t but they are not around it all day.

Full days start to stress him out. Not sure why, he was always ok. Some days are easier that others, some days I can come places others I can’t. Some days he’ll sit and eat food other days he won’t. Sometimes I can order food only to have it as an unofficial take out.

That’s what the other group understand. They understand that I may need to leave, I may have to run away, they understand I’m not leaving. I’m not giving up.

Go back again, remember the places we went, why we went to those places? The clean changing room, the safe places, the closed places, the places we could always see them when they were toddling about, when learning where they fit into this world. I still need that. I know I can’t get it all, but I need the safety side of it more. I need to make sure he can’t escape, he can’t get out, he can’t get lost. I wouldn’t wish getting lost on any child, but if they can at least say their name surely loosing them at 4 is better than loosing them at 18 months? Of course not loosing them at all is much better! Go to these places and ask yourselves would you have attempted it with an 18 month old?

Now I’m not sure where I’m heading, the lack of routine has had a knock on effect on sleep which again will have a knock on effect on what we can achieve.

So far I’m pleased with where Z is at how far he’s come and what he can get done on some days.

I enjoy our days out, our nights out, our random adventures. I hope they will continue for as long as possible. It’s just that little bit harder for us. No, I’m not being awkward, I’m not being funny, I’m not leaving you for my other group. For now we need our two groups for different reasons. Im sure as our journey progresses there’ll be lots of people entering and leaving our lives. Some will stay I know that and some will go I’m prepared for that too.

Posted in Adventures

Family time at Wiggleys

Last week my sister and niece came down for the week. I didn’t get to spend as much time with them as would have liked. Between the weather being rubbish, Z attaching his cousin M who’s much smaller than him I didn’t want her to feel frightened of him, or even ruin her enjoyment of being on holidays!

I picked them up and with my mother we headed to Wiggleys. Lots of people have said how good it is here and being less than an hour away was first choice to try. Animals and a park. Indoor and outdoor.

When we arrived it was a little noisy inside, you enter right by the food station and the indoor play. Z was getting a little anxious but we coped. Got some animal feed and off we went.

There’s not a lot of animals, you have your basic sheep, horse, donkeys and goats. All the animals come to you for food! Z wasn’t impressed with the feeding! He wasn’t too impressed with the animals I’m not going to lie! He did touch a sheep. With me forcing his hand!

The playground there was lovely, lots of open space suitable for little ones and big ones. Both Z and M had fun. Z climbing and running across the bridge trying the assault course. M playing in the houses and down the slide.

The open space is good, well maybe not so much for Z as he could run. Most of its fenced off but there is a woodland walk so was scared if he did run off what would be in there! We did go for a look and it was just a walk!

We didn’t spend too long here with M being a bit younger and Z being Z two hours was enough. I think if you had a few children who would just play you could just take a picnic and sit and watch them play!

It was nice spending time with my mother, sister and niece. At least the weather held off and it was dry.

Posted in autism

Today you’ve struggled. 

Today has been hard. 

Today you’ve struggled. 

The holidays have finally gotten to you, week one you were good, week two you were good, week three you attacked three children. Week four you attacked one child and it all got too much. 

The lack of school, the change in routine, no school and for two weeks dad was home. Then dad goes to work he comes home and little by little we’ve changed upstairs. The spare room was changed about, you accepted it. Your room was changed you cried, you cried some more when you seen our room go the same as yours. You attempted to cover each roomin toys, tsum tsums, books, numbers, letters and toot toot cars. We’ve shouted at you, how many times we’ve picked everything up you’ve tipped them out once more in a different room. 

Last night you didn’t sleep very well, this morning you wasn’t happy waking up. We stopped you tipping the numbers and letters down the stairs before the electrician came. Instead you threw them and spread them everywhere. I shouted. You screamed, dad shouted. You were carried to the car kicking and screaming. 

This was all before 8am. 

Today everything finally got to you. 

I got you out, away from the noise, you enjoyed chips and nachos and came home a happier person. I knew something wasn’t right, I was waiting. You had the giggles, you were being silly. 

Those toot toots wouldn’t line up. You were getting angry, so off they went upstairs one by one iPad in hand. But no electric upstairs means no internet. You didn’t know that. So all these small little things broke you. 

I put pjs on you. I could say that was the start, but I know being on week four was the start. 

You tried getting out the front door, locked, you ran to the back locked, you climbed the washing machine tried pulling off the microwave, I shouted for your safety. You tried attacking the floor, had the toaster, attempted the front door again. I grabbed you kicking and screaming up the stairs. I needed the bed, I needed you safe not to hurt yourself. You grabbed everything, you kicked everything, how I didn’t drop you I don’t know. You dragged your bed away from the wall, you knocked over drawers, you kicked, you screamed and you came out with many random words, words that have meaning to you when you’re singing tonight they were all jumbled. I lay you down as safe as I could for ten minutes. It felt much longer for me I can’t imagine how long it felt for you. Your little body kicking, hitting, squirming. 

I persevered and tickled your arms, your back and wiped away tears. Some my own. 

I got your iPad you were too exhausted to do anything. 

An hour later I’m surprised you were still awake you came down you took crisps and went back to bed, iPad in hand. Not long after you are sleeping, snoring away with not a care in the world. 

Today you struggled. 

Tomorrow is a new day, it’s going to be hard, it’s going to be the same as today. This is the new routine for a few weeks. You’ll be fine. Well get through it! 

Posted in autism

Autism, life two years later.

I remember two years ago when I wrote this, we’ve come so far in two years in so many ways but still feels the same in others.  When I read back on last years update again as much as I know we’ve gone forward it still feels like where we were two years ago! 

Of course we still have the sleeping or lack of, we do start our day really early and end it much later than I would like! We still have the fussy eating and endless nappies to change! 

This last year I’ve really watched Z come on. From words, yes he can’t have that conversation with me yet, but with lots of new words hopefully in time he’ll be able to answer a yes and no question. His understanding is much better, he still won’t follow commands or get anything for me! 

In some places we’re closer to two years ago in respect to what he likes, he’s gone back to the toys he was lining up and watching what he used to watch on tv. ( currently back to Winnie the Pooh!) Maybe it’s something that will always happen, maybe he’ll always go back to things he knows and will find a different use for them. His toot toot cars used to be lined up, then he didn’t bother with them, they sing and he didn’t like that. Now they still get lined up but they also get put on a track, hopefully that’s a start of imaginative play. If he has an animal he’ll try to feed it telling it to ‘eat’. 

I’ve spent this last year watching him try to figure out where he is in the big world, and he’s not found that out yet he’s only four, has anyone? This big world that causes him stress, it confuses him. Things keep changing people eat and things are noisy. 

I’ve watched him grow, I’ve watched him learn how to be around other children in small spaces and not run away, I’ve watched him watching others and try to join in what ever game they were playing, I’ve watched him laugh, cry, and attack others. I’ve watched him iniatate conversation, and get people to do what he wants. I’ve watched him bond with teachers and laugh with them, possibly love them.  I’ve watched him attempt things like a Christmas concert and places I’d never thought he would, like rides at Drayton manor. I’ve watched my small little guy grow up autism hasn’t stopped this. 

Like I said I’ve watched him attack people, I’ve watched him struggle, I’ve watched him in pain and haven’t been able to do a thing about it, just add to that pain by pinning him down for bloods and x-rays. I’ve watched him cry and haven’t known the reason or been able to help. I’ve watched him struggle. Autism is the reason for this. 

In the last two years I in a person I think have changed, more so in the last year. I may never find out where we actually fit in, but I’m having fun looking.  Without autism we’d be on a completely different path, different people and a different outlook on life. There would be people who are big parts of my life right now not even seen, I wouldn’t even know about never mind laugh with. Autism is I’m guessing always going to be hard, I know I’m on a life long journey but with Z showing me the way I’m sure we’ll all be fine! I’m prepared for the laughing, the cries, the meltdowns and no sleep! 

I’m actually excited for school, too see them work with him with his words who knows where we’ll be next year? Maybe I’ll have the answers to my questions, maybe I won’t be changing nappies what ever happens I know I’ll always have my little guy, autism and all.

Posted in Parenting

Where do you fit in as a Sen parent? Do you ever fit in anywhere? 

Does it matter who you bother with? Will you ever totally fit in? 

 When Z was born you kind of loose your old friends and make new friends which is what everyone does. That’s fine you get over that straight away, of course you have new friends who shares the excitement of a new baby, the comparing starts even though they say not to, everyone compares their child to the ones they bother with. Mine don’t sleep through, mine still has three naps, mine does this etc. Then you get to the toddler stage.  As with many other Sen parents who I’m only really meeting now I know it’s quite common for these parents to feel some jealousy when their child doesn’t hit milestones. That could be sitting up, walking, talking and of course toilet training. We all worried, we all noticed that our children didn’t hit those milestones or in some cases hit them really early like Z with his puzzles but because you couldn’t see that in  everyday life it didn’t seem to matter. 

Then when you finally meet and engage with parents from school you really start to notice how different and unique each child with autism are.  I’d say way more unique than children who were at playgroup.  Children at playgroup are like sheep! They follow they interact with one another, they all seem to be very similar, our children are different. They all have very different needs. Ok we can say oh they are similar because they don’t talk, they all run but for each one of them you can really see them thinking before they do what they do. They’ll run for the chase, that’s a game, their just unsure of how to play that game with someone of their age. Come on, Mam gets it that it’s time to run! They can lead you to the door when they know it’s time to go, even if they seem to be having fun they know the time without any clocks! 

As it is now Z is making huge progress with his language and of course I’m proud of him. But it’s that difficult position when I know how I felt when the children at playgroup were doing things and mine wasn’t. Of course I know the other parents are just as excited as me it seems we all thrive on a new thing a child with autism is doing it’s like one is toilet trained, that gives me hope that maybe one day Z will be too. But being in that Sen school setting not each parent we talk to has a child with autism. So they must be feeling the same as me? What if their child talks do they feel guilty because the children are in the same class? Would I feel guilty if it turns out that Z’s best friend was in a wheelchair and Z can walk? We couldn’t have someone over to play who’s in a wheelchair as we have steps to the front door.  Yes I know I’m over thinking things but it’s not something that couldn’t  happen just because someone’s in a wheelchair don’t mean they can’t talk. So it could in theory being a Sen school actually happen. My house isn’t wheelchair friendly! 

Where do we as Sen parents stand? We don’t seem to belong anywhere. We’ve left the safety of the playgroups behind, but we’re all at a different level in school. What happens if Z learns to communicate well and mainstream is mentioned, then we wouldn’t belong there either as he would still have needs, be ‘different’ and of course be the new kid! At the moment I look at Z’s autism and see it as a disability, autism is the reason he’s not talking, has no awareness of danger and have no social skills. So what will happen if he does talk? Will he be too ‘disabled’ for ‘normal’ actives say swimming lessons, but seen as not disabled enough when trying to go through disability swim sessions if he could talk? 

Talking to other Sen parent bloggers I know I’m not alone. 

” Honestly, those baby and toddler classes were heart breaking because the worry back then was unreal. One of the hardest stages of this journey was when I just knew something wasn’t quite “right”, but family, friends, and health professionals tried to convince me otherwise”  This with permission is taken from Laura from Brody Me & GDD .  

Miriam from Faithmummy feels she don’t fit in anywhere. 

“I run a toddler group and while my children still went through breast feeding, teething, etc so many of the mums struggle to relate because my kids are disabled.                                                     We don’t fit in at church.                                  We don’t fit in at family events.                       We are even finding we are not typical.   Even for places like camhs as we have children with conflicting needs. I sometimes feel I don’t fit in here too.Yes f my son gets an award at school I feel so silly sharing it as I think everyone will be laughing at me.                                                  It is just terribly isolating!”

Kerry who blogs over at The Odd Sock Diary say 

 “I don’t fit in with the parents of typically developing children, because my son has Down’s Syndrome, and I don’t fit in with other SEND parents, not even with other parents whose kids also have DS, as my boy faces fewer challenges than many of them. ‘Too disabled’ for one group, ‘not disabled enough’ for the other — it’s like we’re ploughing our own furrow sometimes. But there are a few trusted people who understand.” 

But yet Charlie from Our altered life has the best advice! 

“I try to compete only with myself (it’s why I was always rubbish at sport in school and ALWAYS the last one chosen for group games!). It’s totally natural to look left & right and see others achieving or struggling but it does nothing to help us. It’s much easier said than done but we do fit in, where we are meant to and that’s with our own crew . Social media is incredible in so many ways and then dangerous in others because you don’t always see the full story. I’m thrilled for the parents of toddlers who can recite the alphabet backwards while mummy home bakes Victoria sponge cake that Mary berry would be proud to call her own but I’m winging it one day at a time. I think if people are honest, it’s all any of us are doing x ” 

So just because we’re all parents with of children with additional needs were all going though different things, were all lonely in one way of not fitting in. Well we do fit in somewhere and that’s social media! 

Posted in autism

Who or what makes a child? 

When I see the progress in Z I’m filled with a sense of accomplishment, not being big headed but a lot of people tell me I’m a good parent, but that’s not all down to me.

First off if I was a single parent I’d be way in over my head, and quite possibly a alcoholic! I don’t ask for help, I feel that being an ivf baby I wanted him there fore he’s my responsibility, the same way if I ever defrosted the others, again I’d want them why should I ask others to watch them?! Having the husband home I can just head out if that’s shopping or for coffee I can do it. I’m not dumping Z on anyone. He’s spending time with his dad! My sister don’t live local, so really the only family he knows are my parents and my nan. He knows his other nan but wouldn’t stay with her, she really wouldn’t know how to handle him. 

If it wasn’t for my parents I wouldn’t be able to go out with the husband if I needed too! So say weddings they’ll have Z at theirs so I’m not on a time limit to get back for the babysitter. If any thing happened to us I know he’s happy at my parents, he’s used to staying there. Maybe this is why I may need to get someone in for respite, just another person who he will trust incase me and my parents all need to be someplace the same time. What with dad then being in work where would Z go? 

They are a big part of Z’s life, I’m lucky he his a grandparents to make memories with the same as I did. 

There are people who’s helped Z become who he is at 4 years of age too. Other than my mates, J and E being big roles here everyone just accepts Z, accepts he’s different and that’s good. We have the Health visitor who provided us with portage, who showed Z how to get ready for school. How to sit and finish an activity. How to engage with another person. How to play.                                                                         We had the staff at crèche who helped him to learn what was going to become of his life for the next few years at school! Other children, sharing, learning how to play.                       We had his teachers that’s been with him the last two years, the ones that had taught him the skills he currently has, how to copy being a huge one.  How to stay safe in the pool, learn to tolerate people eating around him and to follow commands.  I’m sure he he does a lot more in school than I’ll ever know parents evening is only a ten minute session.                                  

Then we have other parents going through the same as myself. Who go out on day trips, who meet at soft play and just get it. Get how difficult it can be. Laugh at each other, hand the cocktails out when they are needed! 

These are the people who’s helped Z till now and there’ll be many more! More recently it’s been B and B, accompanying me on days out, making Z look easy and making me laugh.  Oh if you can’t laugh at someone else who’s laughing at themselves you need someone like B and B they will make you laugh! As wrong as it may sound B helps Z with boundaries when he’s attempting to attack him I’m screaming like a loony and B is just taken it all in his stride, there’s no crying and he goes back for more, which isn’t a good thing. But with them both being that little bit more rough and B being a year older than Z I don’t worry as much as I would if he went to attack E as she’s still a lot smaller than him. Like the other day when B wouldn’t move, so with mams permission I picked him up to put him in the car, Z had patiently waited , B was fuming with me moving him and tried attacking me mams shouting at him and before we know it Z is half out of the seat for B by the hair and I’m shouting at Z B has left me alone and me and Mam are laughing. Like I say if we don’t laugh can you imagine the looks we got that day? Or any day to be fair! It’s always easier to laugh it out with someone else that’s going through it. 

They do play nice too!

When you have a child with any additional needs it really is an eye opener, you join groups to chat to people then you realise how lucky you really are, in regards to things like his health. You learn that there’s so many things the professionals don’t tell you! They don’t tell you oh autism, they are likely to bolt, to smear, to never sleep, to never talk, to never listen, to be able to climb and escape anything,  to always want their own way and that’s some of them! Like I say I feel so lucky with Z, he’s quite easy going compared to others we bother with! In our little school group we have runners and climbers and smear loving ones! That’s when I think I’d be quitting, that I don’t think I could deal with! 

So just because I’m Z’s Mam I’m not the only one who’s made Z into the loving, clever number loving guy he is, that’s down to everyone who’s spent time with him and worked alongside him these last four years.